tag:blogger.com,1999:blog-7190291330522537787.post478733487576747463..comments2023-08-15T18:52:50.285+10:00Comments on Spasmodic Dysphonia: Faith, hope and … umm … what is that other thing again?Sue Baylisshttp://www.blogger.com/profile/12681330289537484939noreply@blogger.comBlogger5125tag:blogger.com,1999:blog-7190291330522537787.post-22292237623736822592021-06-13T16:23:36.592+10:002021-06-13T16:23:36.592+10:00
I started on COPD Herbal treatment from Ultimate ...<br />I started on COPD Herbal treatment from Ultimate Life Clinic, the treatment worked incredibly for my lungs condition. I used the herbal treatment for almost 4 months, it reversed my COPD. My severe shortness of breath, dry cough, chest tightness gradually disappeared. Reach Ultimate Life Clinic via their website www.ultimatelifeclinic.com . I can breath much better and It feels comfortable!MATINAhttps://www.blogger.com/profile/03056834682621326306noreply@blogger.comtag:blogger.com,1999:blog-7190291330522537787.post-71498989564630434172007-01-16T17:54:00.000+10:002007-01-16T17:54:00.000+10:00Thank you again for your comment, Yvonne. This fo...Thank you again for your comment, Yvonne. This form of contact is, I believe, very good because it not only helps both of us but other people also who may suffer from these symptoms or know someone who does.<br /><br />I am not aware of other blogs relating to CD. I did spend some time searching but was unsuccessful at that time. However, two excellent sites are (you've probably got them) www.asta.asn.au and www.dystoniaaustralia.org.au/torticollis both sites have good phamplets and or books available on-line and for purchase on-line. The Spasmodic Torticollis Handbook: A Guide to Treatment and Rehabilitation, is excellent. Also, there is a contact telephone number and email address on the www.asta.asn.au site that may be of assistance to you. I think their centre is in New South Wales.<br /><br />The balance problem I experience sounds similar to what you describe. I have had to give away walking and do not go outside my house without a stick or I tend to either fall over or bump into people and or things. Your spasms sound to be the opposite to those I experience. When head pulls forward and to side, it is either torticollis or anterocollis. Mine is retrocollis, to the back. However, I also had a left mastectomy for breast cancer 9 years ago followed by a right mastectomy 6 months ago. Prior to second mastectomy, I believe I had some balance problems from that if in only very casual clothes or pyjames not requiring use of prothesis on left side. Still tend to do 'the crabwalk waltz' along the shopping centre mall when my head pulls back though!<br /><br />I have spoken to 5 people now who have either thought of having a break from Botox treatment or have done so. It really does seem to be a trial and error experience. I will write an article on using a 'force field analysis' as a tool to assist in decision making about the use of Botox. This may give some people an idea of how to structure thoughts towards an appropriate decision for them.<br /><br />Another treatment that may give you relief is physiotherapy by a practitioner who understands what cervical dystonia is. I visit an excellent physiotherapist who understands this condition and stretches my muscles accordingly. Doesn't last long but does give me relief - after the awful pain of actually doing it! For me, this treatment is more effective if given 3 times a week for one week. I get about a month of significant relief. Sometimes a bit less but every now and then I use this method.<br /><br />Hope your Botox treatment resumes soon and is effective for you. Sue.Sue Baylisshttps://www.blogger.com/profile/12681330289537484939noreply@blogger.comtag:blogger.com,1999:blog-7190291330522537787.post-88664522439115503462007-01-16T13:59:00.000+10:002007-01-16T13:59:00.000+10:00I have a google alert daily check happening for ce...I have a google alert daily check happening for cervical dystonia and yours seems to be the only blog out there to my knowledge. Do you know of others?<br /><br />It is nice to have regular contact with other sufferers – together we have much to learn.<br /><br />I was interested to read your comment about balance being a problem. I often wonder how much this problem factors into the lives of other cervical dystonia sufferers.<br /><br />I used to be a confident walker but after a few episodes of nasty falls and recently noticing that I often clip the doorway with my shoulder as I walk through the penny dropped that maybe my balance is impaired.<br /><br />My head seems to want to go down and to the right so I feel I have to force it up to look at the computer screen with the result that it soon starts to shake and wobble and then everything begins to ache from the strain.<br /><br />I had a break from the Botox recently – with a view to assessing wether it actually was helping much, but I am spasming more often and experiencing more pain so I am going back for treatment soon.<br /><br />Great work with your blog sueAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-7190291330522537787.post-50147656083254523902007-01-16T12:18:00.000+10:002007-01-16T12:18:00.000+10:00Megan, thank you for your delightful comment. How...Megan, thank you for your delightful comment. However, just remember, keep those desserts to the LOW FAT kind and you will MINIMIZE your RISK of the cancers my brothers, my sister and I have been inflicted with! Be like Aunty Bett and I, survivors! Also, don't forget the heart disease Dad had and I have, the Type 2 diabetes Grandad had and I have and the Renal Failure Dad had! Sorry to be so glum but BEHAVE yourself - and I'm not talking about safe sex but while on the subject, you may as well remember that too! Love you. Mum. XXXSue Baylisshttps://www.blogger.com/profile/12681330289537484939noreply@blogger.comtag:blogger.com,1999:blog-7190291330522537787.post-37069962094074166312007-01-16T12:02:00.000+10:002007-01-16T12:02:00.000+10:00Stressed, spelt backwards becomes desserts. In the...Stressed, spelt backwards becomes desserts. In the interests of stress reduction and and work/life balance, this is why I have always argued that dessert should be first on the menu.<br /><br />If I eat dessert first am I unlikely to inherit SD? I know I've been dreadful at times but surely SD is not my just desserts.<br /><br />This was a good article. Keep up the good work.Megan Baylisshttps://www.blogger.com/profile/04549696888232735259noreply@blogger.com