Living with Dystonia and re-creating our lives.

Re-creating personal lifestyle can be full of satisfying and fulfilling activities. This is particularly so when speech is effortful, broken and exhausting, neck and shoulders painfully contorted, or other forms of dystonia are troublesome. Sometimes, our lives are not what we expected at this point in time. Looking for alternative activities and hobbies not only enable us to learn new skills or developing the skills we already have, we may also become aware of a creative, healing power within. This creativeness or re-creation of our sense of self has a powerful effect upon our perception of self-worth.

Allowing our abilities to develop, expressing a part of us that neither our self nor others have been aware, can surprise the most skeptical of personality types! Tapping into an online library or handicraft sites requires skills of computer literacy and research ability alone! However, I do hope the highlighted links to the sites in this article provide you with ideas enabling you to extend your skills or alternatively, explore new skills. This is one way people living with dystonia are able to manage the frustrations associated with daily life.

If you would like to leave a comment about what helps you, living with dystonia, I will reply. Meanwhile, in solidarity and hope let us keep on keeping on together.

Sue Bayliss. Cairns, Australia.