I can let you into a little secret as long as we get to SHOUT IT FROM THE ROOFTOPS!
The frequent physical movements associated with dystonia can be equivalent to the effects of working out for 18 hours a day. It is even greater for people whose dystonic movements continue during sleep. For these people, the affect experienced is equal to working out for 24 hours per day.
Dystonic movements of muscular spasms and tremor may result in significant levels of fatigue and diminished stamina thus making life more difficult to get through the day. However, we need to remember there is a risk of confusing fatigue with feelings of lethargy or a lack of motivation resulting from depression or some other medical condition.
Learn more about dystonia in all its forms. These links will take you to Dystonia Australia and the Australian Spasmodic Torticollis Association. Navigate your way around these sites and you will find links to other Dystonia sites in countries around the world.
As you learn more about this neurological disease, please consider how you may assist through donation to the appropriate Dystonia organization in your country of origin. Dystonia scientists require on-going funds to help them advance research leading to finding a cure for dystonia. Until a cure is found, the only hope for sufferers of dystonia in its various forms is to receive treatment of their symptoms.
I would like to let you know, I am traveling North to the beautiful little town of Cooktown tomorrow. My son and I are visiting my husband’s grave, an Australian War Grave, and also catching up with family and friends in that area. We return to Cairns mid week and will be back blogging then. Meanwhile stay safe, stay well and stay involved with learning more about Dystonia.
Sue Bayliss, Cairns, Australia.