Saturday, December 16, 2006

Merry Christmas Mum

Merry Christmas Mum.


I have set this blog up for you so that you can communicate with other people who also have Spasmodic Dysphonia, so that you can continue to consciousness raise about the disability, and so that you have a supportive and global community that works together to eradicate disability discrimination.

Letter N button small



As part of this Christmas gift, I undertake to show you how to post blogs and maintain your new support group web site.

Megan xxxxx

15 comments:

Megan Bayliss said...

Just wanted to give you an example of what the comments will look like.
Merry Christmas once again and I'll see you when we get back on Christmas Eve.
Mxx

Anonymous said...

what a gasser

Jade Pinto said...

Merry Christmas Grandma!
This blog will let you speak loud and clear :)
Love Jade and Mark

Megan Bayliss said...

Hi Mum and thank you to Anonymous. I wasn't sure what gasser meant so I looked it up: Gas A performance that moves you. Ex: The way he 'wails' is a real "gas." (or Gasser).
This is positive Mum. Thanks Anon for being supportive (and Jade too!)
Mxx

Sue Bayliss said...

Megan. What a very Merry Christmas. Thank you for such a great Christmas gift. Although we spoke on the phone, it was hard for me. This is such a surprise. I think I posted a comment on somewhere else instead of here ... dur! You are as wonderful as ever. Your gift is so loving, practical, thoughtful and all those other things I said that went somewhere else!!! I eagerly await for your return so you can help me navigate my way around all this and also contribute with some informative blogs. Being 60 whatever means I am allowed to admit to not understanding it all. I emailed lots of people telling them about this. Julie, Coral and Maureen, replied straight away saying how great it is and that you have done a terrific job. Lots of love, Mum xxx

Sue Bayliss said...

Anonymous. Thank you for a great response. I am very excited about this site and yes, it is indeed a gasser - sounds rather like my ancestral Geordie-land speak?? With my spasmodic dysphonia speak, I sound nothing like my Geordie Grandmother and family! S.B.

Sue Bayliss said...

Jade and Mark. Thank you and Merry Christmas to you, most beautiful Granddaughter and wonderful Grandson-in-law. I will indeed speak loud and clear about how difficult life is for people with this disability and how, through dreadful experiences, I am so aware that very few professional people know anything about this neurological disorder or what effect their lack of understanding has on those of us who live with dystonia - of any form. Love you. Grandma.

The Ipswich Branch said...

Looks good. Thank you Megan. Merry Christmas Mum and Co. Love from "the Ipswich Branch"

Sue Bayliss said...

Our Ipswich connection. Thank you for leaving your message. I think it is great and will get into blogging straight after Christmas. Thinking of you. Have a great Christmas in your new home. Hope you can lay off the unpacking bit long enough to enjoy a great Christmas Day! Lots of love (great way to speak, ay). XX

Tabatha Bayliss said...

Hi Grandma, This is great!
Your new toy! ;) Merry Christmas!!!
Love Tabatha & Christian xo xo xo

Sue Bayliss said...

Thank you my darlings, Tabatha and Christian. You are both so treasured within my heart. Will be blogging articles soon after Christmas. It is great, indeed. Have a terrific Christmas. Love you heaps and heaps and heaps. Grandma. XO XO XO

Paul Martin said...

Merry Christmas from our home to yours. Where's your first article? You might not be able to talk but now we wont be able to keep you quiet!
Paul and Alex xxxxx

hoody said...

dont worry gran i wouldnt know how to navigate a bog site either. i think this is a good idea though. ( as dredful as it is to say ) sometimes i wish mum had spasmodic dysphonia, i am curently listening to her sing (painful). im sure this site will be a great tool for u and others to help educate people about S.D therefore making it an easier condition to live with for both people with and without D.P. merry christmas. c u 2moro. love and thinking of u always, rhys. P.S jade pinto sounds weird doesnt it. ( once a HOOD always a HOOD )

Sue Bayliss said...

Paul and Alex. Great to read your comment. Thank you and a Very Merry Christmas to you. Will blog away after Christmas Day, tomorrow. Much love. XXXX

Sue Bayliss said...

Hi Hoody. Love your treasure of comment. Yep. Know what you mean. Could be very easy to get bogged in a blog! Just as well Grandad was blessed with such great celestial navigation skills, ay (God bless him). Hoping some has rubbed off on me to make navigation, even of a blog site, easier!!! Love you. XXXX