Tuesday, March 31, 2009

World Voice Day Celebration, Cairns. 16th April 2009

Are you a health professional or a person with a diagnosed neurological movement disorder in or around the Cairns area? If so, consider joining us in celebration of World Voice Day 2009.

For Health Professionals Thursday 16 April at General Practice Cairns,
6:00PM– 7.15PM.

For interested clients, family members and carers, Friday 17 April 2009 at GPC,
10am - 11.15AM (Corner Arthur and Sheridan Streets, North Cairns).

Viewing of the film Twisted presents qualitative analysis of diagnostic process and treatment options including Deep Brain Stimulation for patients diagnosed with a neurological movement disorder. The first event is suitable for Medical practitioners, Nurses and Allied Health practitioners. The second event is suitable for interested clients, family members and carers. Tea, coffee and finger foods provided.

These events are hosted by the Cairns Neurological Movement Disorders Support Group and are supported by the Atherton Tableland and Cairns Dystonia Support Group.

For further information please contact:

  • Cairns: Sue Bayliss (07)40321063 / 0407624578 or Gail Rogers 0412906241;

For catering purposes, confirmation of attendance would be appreciated by 14th April.

(Follow the highlighted links in this article for great information)

Sue Bayliss. Cairns, Australia


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Anonymous said...

Hi Sue Bayliss. I also have both conditions. They have been creeping up on me over the past few years and have now reached a stage that I can no longer ignore. I find I am OK in the morning most mornings, but as the day progresses my Dysphonia becomes worse and I become embarassed and silent if I can. By evening I am in a lot of discomfort from both of the conditions and I have established a routine of taking a very hot bath before going to bed. The hot bath calms down the tortocolis and if I do not read but go straight to bed, most nights I will fall asleep quite easily. The worst of it is that I am unable to sit for any length of time without the tortocolis becoming very agitated and painful. This also happens when I lie down.
I sound such a moaner don't I. But I am just so delighted to find someone who knows what I am talking about. Do you have these experiences also?

Lisa said...

In 2006, Laura Lawes was diagnosed with Multiple Scelrosis and given a life expectancy of one year. Three years later, she was not only living strong, but she gave birth to her first son. It was called "a miracle birth". These miracles are possible today, because of the work organizations, such as yourself, have done. Here, at Disease.com (a website dedicated to disease preventions and treatments) we are inspired by stories such as this, and would like to join you in fighting this cause. If you could, please list us as a resource or host our social book mark button, it would be much appreciated. Lets create more of these miracles; together.If you want more information on that please email me back with the subject line as your URL.

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Erik Laurence said...

Hi Sue, I suffered from Spasmodic Dysphonia for many years, but got relief from the SLAD/R operation by Dr. Gerald Burke in California and now have a strong and spasm free voice. I kept a surgical journal including pre and post op voice recordings. Please feel free to share with your readers as it might be of interest to some of them.


Jeroen Swart said...

Hi there, fellow SD friend. I have written a book: Free Your Voice-the Spasmodic Dysphonia Recovery System http://www.amazon.com/dp/B00AXGWYFA

You can get the book for FREE on Wednesday and Thursday by visiting this link. Why am I doing this..? Because I want you to recover before the end of this year. I Feel for you! In return I only ask for a review. Take care, Jeroen Swart